NENfolk 2.0 – Coming Soon!
We are building a bigger and better NENfolk.org to serve the neuroendocrine cancer (NEN) patient and caregiver community.

A clearinghouse of NEN resources
The neuroendocrine cancer community is lucky to have excellent patient advocacy organizations that provide a vast array of educational content: conferences, webinars, videos, podcasts, articles, and more – all to help NEN patients from the newly-diagnosed to the (not so) grizzled veteran. NENfolk.org is a one-stop guide to these organizations and what they offer, including a master calendar of upcoming LIVE learning opportunities.
For NEN Patients, By NEN Patients
I was diagnosed with Stage IV, Grade 3 Small Bowel NET in 2022 and have been learning and advocating for myself from Day 1.
Impartial Science-Based Information
I share educational content and events from all reputable and reliable experts, and do not favor one organization over another. If it’s good, I’m sharing it!
For All NEN Types
NEC, PheoPara, and other non-NET patients sometimes feel excluded from neuroendocrine cancer communities. Not here – we’re all in this together.
NENfolk isn’t here to reinvent the neuroendocrine cancer patient education wheel, we want to realign that wheel and help keep it spinning at whatever speed that’s right for you.

Jud Kimmel
Founder, NENfolk.org
On Facebook, visit and join Neuroendocrine Cancer Event Hub! https://www.facebook.com/groups/805900438294934
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